Parental Acceptance of Children with Cerebral Palsy among Muslim Families: A Qualitative Study on Indicators, Influencing Factors, and Challenges within a Family Counseling Framework

Abstract

Parental acceptance is crucial for the development and well-being of children with cerebral palsy, yet it remains insufficiently studied within Muslim family settings. This research aims to examine the types of acceptance, the factors influencing them, and the challenges faced by Muslim parents of children with cerebral palsy in Padang, Indonesia, through the lens of family counselling. A qualitative case study approach was adopted, involving five parents of children with cerebral palsy at the Gadang Cerebral Palsy Foundation. Data collection involved in-depth face-to-face interviews and documentation, followed by thematic analysis. Findings showed that all five parents exhibited five main aspects of acceptance: (1) understanding children’s feelings, (2) recognising children’s rights, (3) understanding children’s expressions and desires, (4) respecting children’s differences, and (5) fulfilling children’s needs. Acceptance was mainly influenced by knowledge, personal experience, family support, and socioeconomic status, whereas hope and career considerations had less effect. Nonetheless, parents encountered significant challenges, such as parenting stress, limited social support, and difficulties in understanding their children’s physical, psychological, emotional, and communicative traits. These insights underscore the urgent necessity for structured family counselling programmes addressing parental stress and enhancing acceptance capacity among Muslim families caring for children with cerebral palsy.

Keywords
  • Cerebral palsy
  • Family counseling
  • Muslim parents
  • Parental acceptance
  • Qualitative study
How to Cite
Nurhastuti, N., Afdal, A., Fikri, M., & Yuliana, S. (2026). Parental Acceptance of Children with Cerebral Palsy among Muslim Families: A Qualitative Study on Indicators, Influencing Factors, and Challenges within a Family Counseling Framework. KONSELOR, 15(1), 98–112. https://doi.org/10.24036/02026151172-0-86
References
  1. Anindita, A. R., & Apsari, N. C. (2020). Pelaksanaan support group pada orangtua anak dengan cerebral palsy. Focus: Jurnal Pekerjaan Sosial, 2(2), 208. https://doi.org/10.24198/focus.v2i2.26248
  2. Ansari, A. A. (2022). Parental acceptance rejection of disabled children in non-urban Pakistan. North American Journal of Psychology, 4(1), 121–127.
  3. Apple, D. J., Brown, S., & Stone, M. (2008). A father’s interactions with his toddler: Personal and professional lessons for early childhood educators. Early Childhood Education Journal, 36(2), 127–134. https://doi.org/10.1007/s10643-008-0263-2
  4. Australian Cerebral Palsy Register Group. (2018). Report of the Australian Cerebral Palsy Register, birth years 1995–2012. Australian Cerebral Palsy Register Group.
  5. Bagesteiro, L. B., Tellini, T. L., & Brown, L. E. (2023). Analysis of motor characteristics of reaching movements in children with cerebral palsy. Heliyon, 9(2), 1–12. https://doi.org/10.1016/j.heliyon.2023.e13455
  6. Barral, J., & Debû. (2002). Hand and gender differences in the organization of aiming in 5 year old children. Neuropsychologia, 40(2), 152–161. https://doi.org/10.1016/S0028-3932(01)00080-X
  7. Blasco, M., García-galant, M., Laporta-hoyos, O., Jorba-bertran, A., Caldú, X., Mel, M., Toro-tamargo, E., Gimeno, F., & Pueyo, R. (2023). Factors related to quality of life in children with cerebral palsy. Pediatric Neurology, 141, 101–108. https://doi.org/10.1016/j.pediatrneurol.2023.01.006
  8. Borbasi, S. (2004). Navigating the maze of nursing research: An interactive learning adventure. Elsevier.
  9. Bottcher, L., Flachs, E. M., & Uldall, P. (2010). Attentional and executive impairments in children with spastic cerebral palsy. Developmental Medicine & Child Neurology, 52(2), 42–47. https://doi.org/10.1111/j.1469-8749.2009.03533.x
  10. Celikel, R., Ramazanoglu, E., & Talu, B. (2023). The effect of motor learning-based telerehabilitation on quality of life of children with cerebral palsy during the COVID-19 pandemic. Archives de Pédiatrie, 000, 1–6. https://doi.org/10.1016/j.arcped.2023.04.004
  11. Çolak, B., & Kahriman, İ. (2023). Evaluation of family burden and quality of life of parents with children with disability. The American Journal of Family Therapy, 51(2), 113–133. https://doi.org/10.1080/01926187.2021.1941421
  12. Colver, A., Fairhurst, C., & Pharoah, P. O. D. (2014). Cerebral palsy. The Lancet, 383, 1240–1249. https://doi.org/10.1016/S0140-6736(13)61835-8
  13. Crespi, I., & Ruspini, E. (2015). Transition to fatherhood: New perspectives in the global context of changing men’s identities. International Review of Sociology, 25(3), 353–358. https://doi.org/10.1080/03906701.2015.1078529
  14. Deckard, K. D. (2004). Parenting stress. Yale University Press.
  15. Denzin, N., & Lincoln, Y. (2004). Handbook of qualitative research. Sage Publications.
  16. Eliyanto, H. (2013). Hubungan kecerdasan emosi dengan penerimaan ibu terhadap anak kandung yang mengalami cerebral palsy. Psikologi Pendidikan dan Perkembangan, 2(7), 81.
  17. Flux, E., Bar-on, L., Buizer, A. I., & Harlaar, J. (2023). Electromyographic biofeedback-driven gaming to alter calf muscle activation during gait in children with spastic cerebral palsy. Gait & Posture, 102, 10–17. https://doi.org/10.1016/j.gaitpost.2023.02.012
  18. Guillamón, N., Nieto, R., Pousada, M., Redolar, D., Muñoz, E., Hernández, E., Boixadós, M., & Gómez-Zúñiga, B. (2013). Quality of life and mental health among parents of children with cerebral palsy: The influence of self-efficacy and coping strategies. Journal of Clinical Nursing, 22(11–12), 1579–1590. https://doi.org/10.1111/jocn.12124
  19. Hastuti, R. (2004). Penyesuaian diri orang tua yang memiliki anak retardasi mental ringan. Jurnal Psikologi.
  20. Hill, N. E., & Craft, S. A. (2003). Parent school involvement and school performance: Mediated pathways among socioeconomically comparable African American and Euro-American families. Journal of Educational Psychology, 95(1), 74–83. https://doi.org/10.1037/0022-0663.95.1.74
  21. Ikasari, A., & Kristiana, I. F. (2018). Hubungan antara regulasi emosi dengan stres pengasuhan ibu yang memiliki anak cerebral palsy. Jurnal EMPATI, 6(4), 323–328. https://doi.org/10.14710/empati.2017.20101
  22. Keown, L. J., & Palmer, M. (2014). Comparisons between paternal and maternal involvement with sons: Early to middle childhood. Early Child Development and Care, 184(1), 99–117. https://doi.org/10.1080/03004430.2013.773510
  23. Kozeis, N., & Jain, S. (2018). Visual impairment in cerebral palsy. In C. Panteliadis (Ed.), Springer. https://doi.org/10.1007/978-3-319-67858-0_28
  24. Kukke, S. N., Curatalo, L. A., de Campos, A. C., Hallett, K. E., Alter, M., & Damiano, D. L. (2016). Coordination of reach to grasp kinematics in individuals with childhood onset dystonia due to hemiplegic cerebral palsy. IEEE Transactions on Neural Systems and Rehabilitation Engineering, 24(5), 582–590. https://doi.org/10.1109/TNSRE.2015.2458293
  25. Lee, P. C., Lee, T. C., Chen, V. C., Chen, M. L., Shih, D. H., Shao, W. C., & Lee, M. C. (2010). Quality of life in mothers of children with oppositional defiant symptoms: A community sample. Mental Health in Family Medicine, 93–100.
  26. Megalonidou, C. (2020). The quality of early childhood education and care services in Greece. International Journal of Child Care and Education Policy, 14(1), 1. https://doi.org/10.1186/s40723-020-00074-2
  27. Mishra, S., Rotarou, E. S., Peterson, B., Sakellariou, D., & Azzopardi, N. (2023). The WHO European framework for action to achieve the highest attainable standard of health for persons with disabilities 2022–2030. The Lancet Regional Health – Europe, 25, 1–5. https://doi.org/10.1016/j.lanepe.2022.100555
  28. Naqiyaningrum. (2004). Penerimaan diri pada remaja yang berasal dari keluarga bercerai [Unpublished manuscript].
  29. National Institute of Neurological Disorders and Stroke (NINDS). (2018). Cerebral palsy: Hope through research. National Institutes of Health.
  30. Novak, I., Hines, M., Goldsmith, S., & Barclay, R. (2012). Clinical prognostic messages from a systematic review on cerebral palsy. Pediatrics, 130(5), 1285–1312. https://doi.org/10.1542/peds.2012-0924
  31. Oz, H. G., & Nazik, E. (2023). The relationship between fear of COVID-19 and depression, anxiety and stress in persons with disabilities: A cross-sectional study. Archives of Psychiatric Nursing, 43, 15–21. https://doi.org/10.1016/j.apnu.2022.12.019
  32. Paul, S. A. S., Hart, P., Augustin, L., Clarke, P. J., & Pike, M. (2022). Parents’ perspectives on home based character education activities. Journal of Family Studies, 28(3), 1158–1180. https://doi.org/10.1080/13229400.2020.1806097
  33. Pavão, S. L., Santos, A. N. D., Oliveira, A. B., & Rocha, N. A. C. F. (2013). Functionality level and its relation to postural control during sitting to stand movement in children with cerebral palsy. Research in Developmental Disabilities, 35(2), 506–511. https://doi.org/10.1016/j.ridd.2013.11.028
  34. Petrarca, M., Zanelli, G., Patanè, F., Frascarelli, F., Cappa, P., & Castelli, E. (2009). Reach to grasp interjoint coordination for moving objects in children with hemiplegia. Journal of Rehabilitation Medicine, 41, 995–1002. https://doi.org/10.2340/16501977-0436
  35. Polit, D., & Beck, C. (2004). Nursing research: Principles and methods. J.B. Lippincott Company.
  36. Pradipta, R. F., & Andajani, S. J. (2017). Motion development program for parents of child with cerebral palsy. Jurnal Penelitian dan Pengembangan Pendidikan Luar Biasa, 4(2), 160–164.
  37. Prasastiwi, B. H., & Hardjanta, G. (2018). Penerimaan diri orang tua yang mempunyai anak cerebral palsy. Psikologia: Jurnal Pemikiran dan Penelitian Psikologi, 12(2), 100–107. https://doi.org/10.32734/psikologia.v12i2.2254
  38. Priyoto. (2014). Teori sikap dan perilaku dalam kesehatan. Nuha Medika.
  39. Pushpalatha, R., & Shivakumara, K. (2016). Stress, burden and coping between caregivers of cerebral palsy and autism children. International Journal of Indian Psychology, 4(1). https://doi.org/10.25215/0401.112
  40. Puspitarini, Z. (2017). Hubungan antara pengalaman orangtua dalam perawatan kualitas hidup anak cerebral palsy di Yogyakarta tahun 2016. Jurnal Keperawatan Respati Yogyakarta, 4(1), 112–117. https://doi.org/10.35842/jkry.v4i1.67
  41. Putnick, D. L., Bornstein, M. H., Lansford, J. E., Chang, L., Deater-Deckard, K., Di Giunta, L., Gurdal, S., et al. (2012). Agreement in mother and father acceptance-rejection, warmth, and hostility/rejection/neglect of children across nine countries. Cross-Cultural Research, 46(3), 191–223. https://doi.org/10.1177/1069397112440931
  42. Rapson, R., Latour, J. M., Carter, B., Pitsouni, V., & Marsden, J. F. (2023). A cross-sectional study investigating dynamic balance when stepping to targets in children with cerebral palsy compared to typically developing children. Gait & Posture, 101, 154–159. https://doi.org/10.1016/j.gaitpost.2023.02.006
  43. Republic of Indonesia Ministry of Health. (2013). Riset Kesehatan Dasar 2013 (RISKESDAS 2013). Ministry of Health.
  44. Robert, K., & Taylor, B. (2002). Nursing research process: An Australian perspective. Nelson Australia Pty.
  45. Rosenbaum, P., Paneth, N., & Leviton, A. (2007). A report: The definition and classification of cerebral palsy April 2006. Developmental Medicine & Child Neurology, 49, 8–14. https://doi.org/10.1111/j.1469-8749.2007.00001.x
  46. Sakdiyah, H. (2012). Penerimaan orang tua yang memiliki anak penyandang cerebral palsy: Sebuah studi kasus [Unpublished manuscript].
  47. Seok, P. M., Youb, C. C., Min, K. L., Hyuk, K. S., Ho, I. S., & Won, T. M. (2012). Parenting stress in parents of children with cerebral palsy and its association with physical function. Journal of Pediatric Orthopaedics B, 21(5), 452–456. https://doi.org/10.1097/BPB.0b013e32835470c0
  48. Septiningsih, D. H. N., & Cahyanti, I. Y. (2014). Psychological well-being ayah tunggal dengan anak penderita cerebral palsy. Jurnal Psikologi Klinis dan Kesehatan Mental, 3(1), 50–58.
  49. Smithers-Sheedy, H., McIntyre, S., Badawi, N., Goldsmith, S., Balde, I., Gibson, C., Reid, S., et al. (2018). Australian Cerebral Palsy Register Report 2018. Australian Cerebral Palsy Register Group.
  50. Stadskleiv, K. (2020). Cognitive functioning in children with cerebral palsy. Developmental Medicine & Child Neurology, 62(3), 283–289. https://doi.org/10.1111/dmcn.14463
  51. Stadskleiv, K., Jahnsen, R., Andersen, G. L., & Von Tetzchner, S. (2018). Neuropsychological profiles of children with cerebral palsy. Developmental Neurorehabilitation, 21(2), 108–120. https://doi.org/10.1080/17518423.2017.1282054
  52. Stavsky, M., Mor, O., Mastrolia, S. A., Greenbaum, S., Than, N. G., & Erez, O. (2017). Cerebral palsy: Trends in epidemiology and recent developments in prenatal mechanisms of disease, treatment, and prevention. Frontiers in Pediatrics, 5, 21. https://doi.org/10.3389/fped.2017.00021
  53. Sumirat, K. A. N. (2013). Peranan orangtua dalam membentuk kemandirian anak usia dini [Unpublished manuscript].
  54. Vijesh, P. V., & Sukumaran, P. S. (2007). Stress among mothers of children with cerebral palsy attending special schools. Asia Pacific Disability Rehabilitation Journal, 18(1), 1–22.
  55. Vroland-Nordstrand, K., Eliasson, A.-C., Jacobsson, H., Johansson, U., & Krumlinde-Sundholm, L. (2016). Can children identify and achieve goals for intervention? A randomized trial comparing two goal-setting approaches. Developmental Medicine & Child Neurology, 58(6), 589–596. https://doi.org/10.1111/dmcn.12925
  56. Whittingham, K., Sanders, M., McKinlay, L., & Boyd, R. N. (2013). Stepping Stones Triple P and acceptance and commitment therapy for parents of children with cerebral palsy: Trial protocol. Brain Impairment, 14(2), 270–280. https://doi.org/10.1017/BrImp.2013.19
  57. Willis, S. S. (2013). Konseling keluarga. Alfabeta.
  58. Wotherspoon, J., Whittingham, K., Sheffield, J., & Boyd, R. N. (2023). Cognition and learning difficulties in a representative sample of school-aged children with cerebral palsy. Research in Developmental Disabilities, 138, 1–10. https://doi.org/10.1016/j.ridd.2023.104504
  59. Yin, R. (2003). Case study research: Design and methods. Thousands Oaks.
  60. Yuliyati. (2014). Model budaya baca tulis berbasis balance literacy dan gerakan informasi literasi di SD. Jurnal Ilmu Pendidikan, 20(1), 117–126.